Over the past 3 weeks I have had no less than 12 migraine headaches. On Tuesday I finally decided to pray about it. That very day, the cycle broke. I am so glad; it is not easy to function with blinding pain, nausea and dizziness - try functioning and being pleasant when you are feeling that way. I'm sorry to say, I didn't always manage it.
There are constant reminders that God is still here, and still answering our prayers. Every morning, I ask him to give me everything I need to minister to these babies. He is doing just that. A few days ago when I was checking one of my fragile toddlers, I noticed he had a slight heart murmur. I asked a visiting Doctor to check it out. She confirmed that the child had a murmur but said it was very faint. Although the murmur might have been missed, I am very grateful that God gave me ears to hear it. In this little boys case, the most likely cause of his heart murmur is severe anaemia. His immune system is compromised by HIV infection and anaemia might have made him more susceptible to infection than he all ready is.
In the NICU, our miracle baby continues to grow and thrive. Jonathon is up to 4lb 5oz now. He is out of his incubator and off of his caffeine; apnoeas and bradycardia's are a thing off the past for this beautiful boy. Hallelujah!
Our little man had his first bath on Monday. His Mum was sure he would protest. We submerged his body in warm water, let him touch the end of the bath tub with his feet and moved him gently back and forth. To Mum's surprise, Jonathon was very content. We told her that all the time he was growing inside her, he had floated in warm fluid. He felt secure now because he was experiencing sensations that were comforting and familiar. It is such a blessing to experience precious moments like this; to be able to teach his Mummy about her preemie son's inner world, and about the things she can do to make him feel safe and loved, when, a few short weeks ago, we didn't think he would live.
Mum spends 8-9 hours a day in the nursery, caring for her baby. Jonathon is probably around 36 weeks old (measured from the time he was conceived) and so we are working on establishing breast-feeding. There really is no practical alternative to breast-feeding for this Mum and this baby once they go home. Jonathon is doing very well sucking at the breast and although his Mum is anxious about her milk supply, we can reassure her with absolute certainty that she is making plenty of milk. She is able to express 6oz at a time and Jonathon sucks around 2oz at each feed!
'Baby S' is in a stable condition, but she is still in need of urgent medical attention. Her head circumference has increased by a centimeter since we admitted her a week ago and the increased pressure in her brain caused several seizures on Monday and Tuesday, as well as an irregular heart rate. 'Baby S' is on anti-convulsant medications now. She isn't feeding well, but she is taking enough milk to stay hydrated.
It looks very likely that a surgeon in the States will agree to treat our angel. Our Haitian Paediatrician has offered to write letters in support of expediting the processes of obtaining a passport and visa for Baby S. God make this child's path straight and remove any obstacles that stand between her and your will for her life.
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2 comments:
Hello, my name is Stephanie I work with Rebecca Hubly and Hands that Heal as the medical coordinator. I have heard that an md is willing to treat her and we are waiting on the CT to reach him for final approval. Thank you for your awesome care. I wasnt aware she was having seizures. I knew she wasnt eating well. Rebecca and I have discussed her needs for transport once we are to that stage. Do you feel she needs a nurse to be with her? I am available during the week anytime and Hands can pay my airfair to get her to CA. Keep us updated on her situation. We will keep praying everything moves fast.
Thanks Stephanie Mueller
So glad to hear that little miracle baby is thriving and that God is supplying your needs physically and spiritually. God bless you as your minister to the forgotton babes of Haiti.
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